The Fragile X Clinic at Vanderbilt provides a comprehensive, multidisciplinary evaluation by a team of clinicians with interest and experience working with children who have Fragile X.
Clinic evaluations include a medical evaluation, a speech and language evaluation, and an occupational therapy assessment. Since there are multiple team members visiting a child, the appointment may last up to four hours.
The Fragile X Clinic also is a member of the Fragile X Clinical and Research Consortium, consisting of clinics throughout North America specializing in Fragile X related disorders.
Jennifer Hamilton, L.C.S.W.
Laney Dunn, S.L.P.
Heather Kavanaugh, O.T.
Preparing for your visit
After we receive a referral or request for an appointment, parents will receive a packet of information that includes:
- Medical and behavioral history form
- Behavioral Pediatrics feeding assessment
- Child sleep habits questionnaire
- Aberrant behavior checklist (1 copy for parents, 1 copy for teachers)
- Cover letter with instructions
Primary care doctors or other subspecialists can make a referral for a child to be evaluated.
On the Appointment Day
Appointments for Fragile X Clinic begin at 8 a.m. Please arrive a minimum of 15 minutes prior to scheduled appointment time. If families arrive 30 minutes after the scheduled appointment time, their child will not be seen, and they will need to call the clinic to reschedule the appointment.
Appointments may last up to four hours so please bring items that are familiar and comforting, such as toys, books, and snacks. In addition, families should bring extra diapers, formula, bottles, and changes of clothing.
Since the appointments are long and require information and observations from the parents and child, it is important that families do not bring other children. If it is absolutely necessary to bring a sibling, we ask that another responsible adult also accompany to provide assistance.
The Fragile X Clinic is located on the 9th Floor of the Doctors' Office Tower at Monroe Carell Jr. Children's Hospital at Vanderbilt. Click here for directions.
© 2014 Monroe Carell Jr. Children's Hospital at Vanderbilt